On the Road Again

Dave and I went up to Hopkins yesterday to meet with his oncologist there.  Currently, Hopkins has three phase II trials available.  The first one Dr. A was not too excited about.  It is an immunotherapy trial which is a hot topic in oncology these days.  Unfortunately this trial has shown no success in colon cancer patients except for one whose tumor was microsatellite unstable.  Dave’s tumor is not that type.  The other two trials have potential but there are certain markers they are looking for in order to qualify.  For the first one, Dave has less than a 20% chance of being a match.  However, for the second on he has a 40% chance.  So he signed the consent forms and his tumor tissue will be tested.  We should have an answer in the next couple of weeks.  There are also some phase I trials available but Dave and I talked about quality of life versus potential impact.  Guess we will cross that bridge if we come to it. 

While we were in the waiting room one of the nurses who organized the retreat we went on found us.  It was great to catch up with her.  She has convinced Dave to participate in a “Survivors’ Day” being put on by Hopkins.  He will be modeling some men’s fashions, I guess.  He is already teasing me about “being married to a model”!  She and I had a chance to catch up while Dave was having his vitals taken.  We talked about the grim prognosis, and she reassured me that people get to a point when they are no longer participating in life and that in no way was Dave there.  She also reiterated that doctors don’t really know.  They can make a guess but often they are wrong.  Of course, we firmly believe these things too.  It was nice to hear someone in the cancer world confirm our beliefs.  

Sam and I are about to hit the road back to Baltimore for her orthopedist appointment.  Hopefully he will be able to do something to help with her hip pain.  Baltimore is starting to feel like my second home.  Very grateful to have such amazing resources just an hour up the road.

xoxo,

Robyn

 

8 thoughts on “On the Road Again

  1. Very raw… Always have your family in the back of my mind… Sending you hope and continued desire to live life 🙂

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