Staying the Course

Image“Hi Dave,

So the scan was fine.. Ill call you later regarding the possibilities.  One spot a mm or two bigger, another smaller, all of which we call in the standard error of measurement of the scan (think romney obama 51 49 but the error is +/-5 points), so the same and all dead tumor spots, which is good and perfect in my regards. I will call you later today between stuff I have to do at the hospital and voting.”

 

Dave got this email yesterday from his doctor.  It is essentially what we have been seeing over the last couple of scans – stable disease.  The “all dead tumor spots” was new information and got our hopes up that a chemo break might be possible.  When Dr. S. called Dave later in the evening, he said that he still has live tumor cells in his body.  Armed with this information and the fact that he can’t continue the drug trial unless he stays the course, Dave has decided to continue his full chemo regimen for now.  

Dave’s wonderful sister, Kris, went with him to his appointment today since I was stuck in a day long training for our Title I program.  She and I brainstormed a bunch of questions about taking a chemo break, maintenance chemo and staying on the current treatment plan.  It is so valuable to have as much information from as many different experts as possible because in all likelihood, Dave is going to NEED a break from all of this.  He is also going to consult with the doctor he saw at Johns Hopkins to get her opinion too.  

For now, we keep chugging along.  I am one part relieved that the protocol that is working for Dave is going to continue, and I am two parts disappointed for Dave that he doesn’t get to have that normalcy he wants so much.

xoxo

Robyn

 

 

Highs and Lows

At the dinner table, we have a tradition in which each person tells about their highs and lows for the day.  These are mine for today.

High – That’s easy.  Dave’s scan news was good.  His tumors remain unchanged in size and number.  In other words, stable disease.  There is a possibility that some of the tumors could be scarring which would indicate they are dying.  I am so hopeful that this is what is happening.  He has two more rounds of chemo to go, and then we will discuss what the next plan of attack is.

Low – Electronic communication from school.  I got two emails from Samantha’s school saying that she was marked absent from a class.  She swears she was there, and I believe her.  The schools also send interims via email every two weeks.  So, every two weeks I get to see how many assignments Grant has failed to turn in.  I think life was less stressful when you didn’t really know what your kids were up to at school in the day-to-day!

Bonus High – It’s Wednesday.  “Mom/Grammy makes dinner” night.  Now Mom is out of town, but those of you who know her won’t be surprised to hear that she made it ahead of time so I could just heat it up tonight.  Tonight’s menu is roast beef, baby red potatoes, cucumber salad, green beans, and homemade applesauce.  She also provided pudding and/or fresh fruit for dessert.  The fresh fruit didn’t make it until tonight though.  It has already been gobbled up.  The whole family is excited about Wednesday night dinners.  We are very fortunate folks.

xoxo

Robyn